They shoot us into the past. They beg us to play the ‘what if’ and ‘if only’ game. They land us on unsteady ground. Triggers.
Last two weeks have been tough. We didn’t get good news from the latest scan results. Add to that, an unanticipated surgery to resolve new vascular issues and painful lymphedema in the leg – a gift from radiation we cannot return. Whether it’s side effects from treatment, abnormal blood work – whatever – there’s always something […]
In my professional life, I lean on a strategy I call “test, measure and adjust”. What I like about it is that it encourages experimentation, it creates space to identify what’s working and not working, and it invites creative alternatives. The more I’m exposed to caregiving, the more I believe “test, measure and adjust” is a […]
Create a system that works for you where medical information is easily and quickly accessible. To every appointment or test, I carry a shoulder bag that includes: 1) a list of active medications, 2) a list of the latest scan and test dates, 3) summaries of the test results, and 4) if relevant, MRI or […]
You know your body. You know your loved one’s body. You know their medical history, how they respond to treatments, how they feel about a procedure, and what it means when they say ‘quality of life’. You and your loved one want a doctor and medical team who is open to exploring ideas and opinions […]
Here’s what I know about respite care – it helps caregivers better manage the care of a loved one battling an illness. It offers temporary relief care to give primary caregivers a well-needed break to relax and have time away from day-to-day caregiving responsibilities. It can be for a weekend, a day, a few hours […]
Caregiving is a 24/7 gig. Supporting Jeff’s wellbeing is always on my mind whether I’m physically doing something to help him or thinking about how to manage a particular issue we’re facing.
5:00am: I woke up to tiny groans. Jeff had his fourth round of chemotherapy Wednesday – Friday, so we decided to stay at SCCA House on Thursday. We thought it best to avoid the late night, hour+ drive home and “gift” ourselves time in the morning to relax and rest before Friday infusion. Jeff was having […]
Today is my parents 48th wedding anniversary. What a remarkable day to celebrate this special, and (frankly) uncommon milestone. Only they know all of the memories they’ve created over the last 48 years together. In sickness and in health, good times and bad, annoying habits and all. I am filled with love, admiration and respect […]
Last Friday, I found myself standing in the middle of a Seattle sidewalk, swimming in a sea of lanyards and I started to cry. Hundreds of employees from the surrounding tech companies were breaking for lunch and bombarding the streets to hit their favorite eats. I watched these employees buzz by me with their prepared […]