They shoot us into the past. They beg us to play the ‘what if’ and ‘if only’ game. They land us on unsteady ground. Triggers.
Last two weeks have been tough. We didn’t get good news from the latest scan results. Add to that, an unanticipated surgery to resolve new vascular issues and painful lymphedema in the leg – a gift from radiation we cannot return. Whether it’s side effects from treatment, abnormal blood work – whatever – there’s always something […]
In my professional life, I lean on a strategy I call “test, measure and adjust”. What I like about it is that it encourages experimentation, it creates space to identify what’s working and not working, and it invites creative alternatives. The more I’m exposed to caregiving, the more I believe “test, measure and adjust” is a […]
You know your body. You know your loved one’s body. You know their medical history, how they respond to treatments, how they feel about a procedure, and what it means when they say ‘quality of life’. You and your loved one want a doctor and medical team who is open to exploring ideas and opinions […]
#2. Do Your Research. Bring your own ideas and the ideas of your loved one to the medical team – and find the right team member willing to explore them with you. Ask for the clinical studies and research reports and have your oncologist explain them to you. Meet with the radiation oncologist, the medical […]
Thanks for joining us for the new Advocacy series! Jeff and I are teaming up to showcase 5 Ways cancer caregivers and their loved ones can be active health advocates and navigate the daily demands of cancer with strength and confidence. Our hope is that you’ll share your experiences with us in the comments so that […]
The last 30 days have been filled with unexpected lessons. The new pain meds Jeff was on made him unsteady and one night while getting out of bed to use the bathroom, he fell. The crashing sound of him hitting the floor woke up the house just after midnight. I rushed over, the dogs rushed […]
A cancer diagnosis creates emotional and psychological turmoil for the entire family. Life is drastically altered – it becomes immersed in all-that-is-cancer. Having the right type of respite care is a life jacket that provides temporary support. Whether in-home, outside, informal or formal, respite care is the “extra lift” that keeps your head above water. […]